January 25, 2011

When sorrows like sea billows roll...

I heard a lot of scary words today. A lot more took place during Grant's first neurological appointment than I expected. After reviewing all of his paperwork (the Watkin's Center faxed over a whole stack of medical reports and evaluations), asking many questions, and performing a couple of simple exams, the doctor had some theories. None of them good. I am still processing the information and am emotionally worn out so I am going to just list out what was spoken.

Possible causes for Grant's developmental delays:
  • brain improperly formed during development in the womb
  • low or no oxygen for too long during labor
  • a stroke that could have taken place shortly after birth
  • Fragile X Syndrome
  • some other genetic disorder

Tests that will be conducted over the next couple of months:
  • genetic testing: a Fragile X DNA Test and Chromosomal Microarray (I am taking Grant to Levine Children's Hospital tomorrow to get the blood work done for this)
  • a sleep deprivation EEG
  • an eye test (to peek at the brain behind the eyes)
  • an MRI
  • another psychological evaluation
Please continue to pray for us. This news has been difficult to hear - and we are just beginning.

When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, Thou has taught me to say,
It is well, it is well, with my soul.

Though Satan should buffet, though trials should come,
Let this blest assurance control,
That Christ has regarded my helpless estate,
And hath shed His own blood for my soul.

It is well with my soul.

from the hymn "It Is Well with My Soul"


  1. Karen, I'm so glad your family knows where Peace comes from. I'll continue to pray for all of you as you navigate this chapter. Lots of love to all of you.

  2. Karen, thank you for sharing. I am praying for God's sweet, tender mercies to cover you and His holy peace surpasses and quiets any fear, worry or any other emotion that would set itself up against the knowledge of Christ.

    Y'all will continue to be in my prayers! With love, Samantha

  3. It's gonna be okay. I essentially had a stroke after birth too, and although it is SUPER HARD for both the parents and the kid, it's going to be fine. Grant is already walking, talking, and interacting with you, which is more than I can say for myself at that age. I know it's not what you planned, but your dreams for your son will never die. They might change a little bit, but dreams refuse to die. God didn't create us that way.

    If you allow God to redeem your pain (which is also painful work), your life and Grant's life will be beyond your wildest dreams. Mine is.

    I love you guys and you're in my prayers.



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