May 15, 2011

Update 5/15/2011

Things are busy here as usual. With warm weather the norm, we are always outside. If we're not outside, Grant is plastered the backdoor frustrated that he can't get out.

Grant continues to progress - slowly but surely. I am working on the paperwork to get him into the Duke Fragile X Clinic. I was told that it is possible they may have a spot for him towards the end of summer! I can't wait to get some clear guidance on some specific issues. Also, Grant will be in the hospital at the end of the month for a 24-hour video EEG (electroencephalogram). An EEG is a test that measures and records the electrical activity of the brain. We need to find out if Grant is experiencing any seizures.

Wesley turned 14 months old on Friday and is getting faster by the day. I can hardly keep up with the boy. He is learning sign language along with Grant, can make several animal sounds, and I am pretty sure he is training to be a sprinter. He loves trucks, tractors and his Thomas train. I love hearing him make motor noises as he drives the vehicles around. He is eating a little better but still not up to par. Please continue to pray for this.

We do have a huge praise to share... Wesley's Fragile X test results came back negative! Praise the LORD! Not only did we confirm that Wes does not have the full mutation but he does not have the premutation either (he is not a carrier). This is wonderful news! Wesley will not have the issues that come with the premutated form of Fragile X and he will not have to worry about passing the gene on to his children. We are so thankful for this blessing!

Time continues to fly by and there is only a few more weeks of school for Aaron! He is very much looking forward to the change of pace painting will give him this summer. God continues to provide exactly what we need each month. Praise God! We are so thankful. With Jehovah Jireh we are never in want and I am learning to enjoy the contentment that comes with simple living.

Two things I asked of You, do not refuse me before I die: keep deception and lies far from me, give me neither poverty nor riches; feed me with the food that is my portion, that I not be full and deny You and say, 'Who is the LORD?' or that I not be in want and steal, and profane the name of my God. Proverbs 30:7-9

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May 15, 2011

Update 5/15/2011

Things are busy here as usual. With warm weather the norm, we are always outside. If we're not outside, Grant is plastered the backdoor frustrated that he can't get out.

Grant continues to progress - slowly but surely. I am working on the paperwork to get him into the Duke Fragile X Clinic. I was told that it is possible they may have a spot for him towards the end of summer! I can't wait to get some clear guidance on some specific issues. Also, Grant will be in the hospital at the end of the month for a 24-hour video EEG (electroencephalogram). An EEG is a test that measures and records the electrical activity of the brain. We need to find out if Grant is experiencing any seizures.

Wesley turned 14 months old on Friday and is getting faster by the day. I can hardly keep up with the boy. He is learning sign language along with Grant, can make several animal sounds, and I am pretty sure he is training to be a sprinter. He loves trucks, tractors and his Thomas train. I love hearing him make motor noises as he drives the vehicles around. He is eating a little better but still not up to par. Please continue to pray for this.

We do have a huge praise to share... Wesley's Fragile X test results came back negative! Praise the LORD! Not only did we confirm that Wes does not have the full mutation but he does not have the premutation either (he is not a carrier). This is wonderful news! Wesley will not have the issues that come with the premutated form of Fragile X and he will not have to worry about passing the gene on to his children. We are so thankful for this blessing!

Time continues to fly by and there is only a few more weeks of school for Aaron! He is very much looking forward to the change of pace painting will give him this summer. God continues to provide exactly what we need each month. Praise God! We are so thankful. With Jehovah Jireh we are never in want and I am learning to enjoy the contentment that comes with simple living.

Two things I asked of You, do not refuse me before I die: keep deception and lies far from me, give me neither poverty nor riches; feed me with the food that is my portion, that I not be full and deny You and say, 'Who is the LORD?' or that I not be in want and steal, and profane the name of my God. Proverbs 30:7-9

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