August 18, 2011

Fragile X and Supplements: a new quest

There is no cure for Fragile X Syndrome and treatments are still in the research and clinical trial stages. Incredible discoveries and breakthroughs are being made but some days, especially on the difficult days, I get very impatient and wonder how much longer must we wait?

In the meantime, we try to give Grant all the therapy we can afford and pray that God will multiply our efforts. My latest quest has been to make sure Grant is on a good diet and getting all the vitamins/supplements he needs.
A long row of supplements we are trying.*

There isn't a lot of information out there specifically on Fragile X Syndrome and supplements (at least not all in one spot); however, there is an overabundant amount of information on Autism and supplements and you must be very careful what to rest your hat on, so to speak. I am skeptical by nature and have a scientific way of thinking (controlled environment evidence-based type of thinking), but when you have a child with special needs you are driven to step outside of the scientific box to try anything reasonable that might help.

Yes, I know that vitamins and minerals are technically science but "homeopathic remedies" are often considered, well, unconventional and unpopular.


As you can see from the picture above, we dove headfirst and have begun using various natural supplements. My mission is to discover which of them truly help Grant and which are a waste of money.

*Before I continue, let me say that I am NOT a doctor and that you should ALWAYS get approval from your child's doctor before using ANY supplement. That was step one for us.

It has been a costly quest. But hopefully it will be worth it if we can find vitamins/minerals that Grant's body needs and will help his development.

I am not comfortable sharing detailed information about any of the supplements at this time. If you want to begin your own supplement quest I suggest you begin researching, visit a Fragile X Clinic, join support groups like the Fragile X Natural Treatments Facebook group, and talk with other parents who have begun the journey before you. And, of course, get your doctor's blessing!


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